Maddi’s Story – Alopecia Areata

Mar 18 2009

This is Maddi’s story. ** PLEASE SHARE THIS VIDEO WITH YOUR FAMILY, FRIENDS, CO-WORKERS, ETC. HELP US RAISE AWARENESS ABOUT THIS DISEASE, AND THE PEOPLE WHO CAN HELP!!! My daughter Maddi was diagnosed with Alopecia in November of 2005 at the age of 14. Alopecia has no bounds, it can affect ANYONE at ANYTIME. It is NOT contagious. It is NOT hereditary. Medically, there is no CURE. I immediately researched what to do medically. Nothing I found gave us any hope, until we were directed to a …

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25 Responses

boriquadominicana

March 18th, 2009 at 6:58 am
1

i got alopecia when i was like 5, and it grew back for like literally 3 months but now its falling back out again
guns4good

March 18th, 2009 at 6:58 am
2

Be strong ladies! You are beautiful and you shouldn’t accept anything but a total degree of normalcy! If anyone gives you crap–that’s what your middle finger is for.

BE STRONG!
brianwurst1234

March 18th, 2009 at 6:58 am
3

I ve had alopecia for 26 years now. It started off really bad but over the years It only shows up in a spot or two here and there. They take about 2 years to grow back once they fall completely out. I havent really tried any meds for it except Rogane which did nothing.
echo91191

March 18th, 2009 at 6:58 am
4

all i know is that both my eyebrows and a few hair patches grew back completely…no more painstakingly drawing in eyebrows before school at 6 AM anyway, i just wanted to make you aware of another treatment, in case the one you are on is not as effective as would be liked tell your daughter what a brave person she is for going through this! (and sorry for this ridiculously long message hahah)
echo91191

March 18th, 2009 at 6:58 am
5

it wasn’t until i went to children’s memorial that i found any help at all…they gave me squaric acid. i’m not sure if you’ve heard of it yet, but it is a man-made acid which, when applied to the skin, is an irritant. because of this, it distracts the immune system from attacking the hair folicals, and instead turns to attacking the acid.
echo91191

March 18th, 2009 at 6:58 am
6

hello there! my name is marissa, and i was diagnosed with alopecia areata when i was 14, just like your daughter was. i remember i went through a year of dermotologists trying various medications while i lost both my eyebrows.
92benno92

March 18th, 2009 at 6:58 am
7

my naturopath (she uses kinesiology) gives me new pills and herbs every month, but my mum hates paying for it because she doesn’t believe in it, and is too expenisve .. but should i pay for it? i don’t know if it’ll work and they say it differs for some .. i got 300 ml’s of cortizone into my head and it stops hair from falling, but only lasts about a month .. what to do?
mom2allison

March 18th, 2009 at 6:58 am
8

My daughter just cut her hair today to donate to Wigs 4 Kids. She has been waiting a couple months until cheerleading was over to be able to do it. She is so excited to help out kids that don’t have hair. Your daughter has an amazingly beautiful personality, and I am glad she was able to benifit from Wigs 4 Kids. I will show Allison this video, she will be excited to see someone that has recieved a wig from the organization.
bonethuggin420

March 18th, 2009 at 6:58 am
9

i love you maddi <3

– nick
m3times2

March 18th, 2009 at 6:58 am
10

Can’t say we ever tried onion juice…
we went straight to the Kinesiologist…
He found that Maddi had “triggers” that set off a reaction in her, as well as parasitic issues, and with the proper vitamins and herbal pills, her hair loss stopped completely. It did all grow back in, but hasn’t grown in length any because we had to stop treatments… no insurance… no money, etc.
Try to find a kinesiologist in your area, or if you’re in Michigan, I’ll let you know who ours is!
sasakjjk

March 18th, 2009 at 6:58 am
11

Thank you for posting this video. Our son, who just turned 11, was just diagnosed with Alopecia Areata. It’s still new to us and it hurts me so much to see him have to go through this. I want to do the best I can for ihm so he remains has a positive attitude. Thanks for this support.
joel666one

March 18th, 2009 at 6:58 am
12

I think you’re great! My 1st bald patch was tiny & I thought nothing of it, 4 months later I couldn’t be seen in public! I was 25 then working full time so I was able to pay for treatment, but knowing what I no now it was the wrong treatment. Anyway it took 2 years to re grow fully & 1 year later, it is back again.. I fear it is something I will have to live with for the rest of my life.. Next week I try my first cortisone injection, but I wondered have you ever tried placebo (onion juice)?
JJTheAngel3

March 18th, 2009 at 6:58 am
13

Aww I Wish they’d find a cure .. Bless you & dont worry for looks .. :]
bosniak14

March 18th, 2009 at 6:58 am
14

i have this to except i have most of my hair i had it when i was 10 now im 15 and my hair falling.
m3times2

March 18th, 2009 at 6:58 am
15

Have you tried a Kinesiologist? Try to find one in your area. They use all NATURAL treatments… they’re painless… and they actually work!
gilerwen

March 18th, 2009 at 6:58 am
16

But it was still rough through high school if some one would pull the skull cap off or ask why i was allowed to where it, and id have to explain. Now i just shave my head with bald being more in style, tho i still have to shave my head every day for it not to show. and just a few years ago i lost my eyebrows and eyelashes. and am hopeing to find a treetment thats safe to use that close to my eyes to get them back, after 20 years with Alopecia Areata I dont see it goin away for me.
gilerwen

March 18th, 2009 at 6:58 am
17

what a heart warming story, Im glad you have found ways to deal with it, I got my Alopecia Areata when i was 6 years old, im 26 now, so ive had it alont time, i never did wigs, when i was younger i tryed to comb ove the spot witch worked for a while till new ones developed, or they moved. then in highschool i tryed wherein skull caps (bandana’s) and was allowed to by talking to the teachers and stuff on the first day of school befor classes.
hellotheenglishman

March 18th, 2009 at 6:58 am
18

What a beautiful young lady you are Maddy, I stumbled upon your video researching alopecia, keep strong, remain positive.
KDMakhoul

March 18th, 2009 at 6:58 am
19

wow really I will do that right away, THANK u sooooooooooooo much!!! I will contact one forsure!!!
m3times2

March 18th, 2009 at 6:58 am
20

You can always try a kinesiologist as well. They will test, treat and help your daughter get her hair back, and it’s PAINLESS, homeopathic, needle free treatment.
KDMakhoul

March 18th, 2009 at 6:58 am
21

That was awsome!!! I have a 6 yr old daughter who has it and school has been hell for her but she is strong and will not wear anything on her head, she is proud of who she is which is great!! Im not that strong !! However, she would like a wig, so Im going to contact wigs 4 kids, thank you!!! and keep your head strong Maddie!!
sstakem

March 18th, 2009 at 6:58 am
22

Go Maddie…. AN excellent video i also hav alopecia but it is only small patches n so far i can cover dem ur video is very encouraging.
freeway101bz

March 18th, 2009 at 6:58 am
23

Many thanks for your kind words!!
My son is experiencing only positive reactions also of children – at the moment…
Of course there are many questions …
But it also will come days on which tears will flow…
But we will make it! )
I love your or Maddi’s Video…I have looked at it already 3 or 4 times .-)
Sorry for my bad english Have a good time!!
freeway101bz

March 18th, 2009 at 6:58 am
24

Look at LIVING WITH ALOPECIA
m3times2

March 18th, 2009 at 6:58 am
25

You’re funny Ray Ray! Punctuation goes a long way! AND, the word ARE, actually has an R in it! LMAO